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Patient story: Rebecca

Sue Clark talks to us about her daughter Rebecca, who continues to benefit from the ongoing work of the CBTRC.

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Research

 

Clinicians, families and patients discuss a very serious operative brain injury called cerebellar mutism, and the CBTRC's reserach which is looking for ways to reduce the frequency and impact of this complication. 

With thanks for our friends at JTVcancersupport.com for producing the film, and the Posterior Fossa Society.

 

Professor David Walker, Dr Rob Dineen and Donald Macarthur discuss the implications of the research CBTRC is conducting and how the risk of cerebellar mutism can be reduced.

With thanks to JTVcancersupport.com for producing this video.

 

 

Dr Ruman Rahman of the CBTRC talked about a study he led which found that a polymer originally designed to help mend broken bones could be successful in delivering chemotherapy drugs directly to the brains of patients suffering from brain tumours. (Read press release.)

Find out more about drug delivery research at the CBTRC.

Video reproduced by kind permission of the BBC East Midlands Today

 
Professor David Walker talks about Intrathecal Chemotherapy which is a way to give chemotherapy directly into the CSF via a port. He explains how they are currently using this method of treatment on brain tumour patients and how they are collecting research along the way. We also hear from patients Peter and Alex who are currently receiving Intrathecal Chemotherapy.
 
Professor David Walker

Professor David Walker describes a survey outline with an aim to obtain a consensus for treatment options in patients with optic pathway glioma associated with neurofibromatosis-1

Listen to his vlodcast.

 

 

Patient stories and public engagement

Life Cycle 4

 

In 2014, the Vice-Chancellor and a team of colleagues took part in Nottingham Life Cycle 4, cycling to the four corners of Great Britain. Together with a fantastic of team of supporters, including the families of children affected by the disease, the team raised a staggering £785,000 – with every penny going to help to improve treatment and outcomes for children at the centre. 

Find out more about Life Cycle.

 

All They Need is a Scan

All-they-need-is-a-scan

jtvcancersupport.com and ex-brain tumour patient Peter Wilkinson sets out on a year long journey to find out how things can improve when it comes to brain tumours.

Peter investigates the need for more research, how vital it is for early diagnosis and how lobbying your local MP could actually help make a change and make more people aware of the devastating impact of brain tumours.

 

Not Everyone Is As Lucky As Me 

Not everyone is as lucky as me

It’s a big day for Sam White and Peter Wilkinson as they head to Brussels to talk at the rare cancers event which is being held at the European Parliament.

Sam and Peter highlight the issues they have experienced when being told they had cancer and how more research is needed to ensure a better quality of life after treatment

 

HeadSmart National Launch Event

HeadSmartLaunch

The HeadSmart – be brain tumour aware campaign was officially launched in London on Wednesday 8th June 2011.

HeadSmart is a new joint campaign by the Children’s Brain Tumour Research Centre at the University of Nottingham, the Royal College of Paediatrics and Child Health and the Samantha Dickson Brain Tumour Trust that aims to help parents and health professionals spot the signs of brain tumours in children and young people and raise awareness of brain tumour symptoms, to help speed up diagnosis rates. 

Watch the full presentation of the launch which were attended by healthcare professionals, researchers, charities and ex-patients.

 

The Debate: Brain Tumour & Beyond 

The debate brain tumour and beyond

Professor David Walker joined the live debate originally broadcast on 19th April 2011.  Presented by ex-brain tumour patient Peter Wilkinson discusses the key points of the Brain Tumour manifesto which highlights a need for early diagnosis, better quality of treatment and need for more research. In the audience discussing these issues are professionals, charity workers, ex-patients and their families.

 

More Than A Spoonful of Sugar - difficulties in returning to school

On 12th November 2010, our patient Sam White spoke at "More Than A Spoonful of Sugar" conference and talked about the difficulties in returning to school during/after treatment. 

 

Beating the Odds

Professor David Walker was interviewed and talked about the work at CBTRC in the video "Beating the Odds". This video was shown in the Samantha Dickson Brain Tumour Trust Charity Ball on 13th November 2010 at The Dorchester Hotel in London.  The event was a huge success and £110,000 was raised on the night.

 

The Developing Brain in Neuro-Oncology

The Teenage and Young Adult (TYA) Frontier meeting

A highly informative and insightful film covering all there is to know about The Developing Brain in Neuro-Oncology conference, which took place back in April 2008 at St. John’s College, Cambridge.

Looking closely at the needs of teenagers and young adults with brain tumours, Professor David Walker talks about the main aims of the conference and how ultimately this will help aid future patients and give them the best chance of survival and recovery.

 

Children’s Brain Tumour Research Centre Family Open Day

CBTRC family open day 

Our patient Matt attends the Children’s Brain Tumour Family Open Day, where he finds out everything there is to know about situations just like his own. Matt also learns lots of interesting new facts with the help of some of the professionals on hand to talk to him, which soon results in the modelling of a pair of very fetching pink goggles! It’s not all about learning however; Matt also tries his hand at plate spinning, with mixed success!